My Nonprofit Reviews
Plinfut
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1 reviews
Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA
It is absolutely stunning what BSF manages to do in so many areas. Financing and coordinating scientific research, bringing patients with Barth syndrome together (online and face to face), supplying information for patients, families and physicians. And the bi-annual conferences bring all these topics together. No other patient group has been able to do any of this on such large skill, let alone for a rare disease.
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If I had to make changes to this organization, I would...
Absolutely nothing. They know very well what they are doing.
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2014
Role: Client Served
