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mommabear

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1 reviews

Review for PANDAS Network.org, Menlo Park, CA, USA

Rating: 5 stars  

My typically developing and super sweet son was diagnosed 7 years ago with PANDAS. He was a fun-loving , care-free, 5 year old having the time of his life in KG...until the morning he woke up a completely different kid:( Luckily there are awesome non-profits, like PANDAS NETWORK, that make it their mission to spread the word about this debilitating and scary strep attack on the body! I refer to their site often and copy and paste their articles and info pages very frequently to share with others, including teachers to educate them on identifying PANDAS! We were blessed to figure out early that the extreme OCD, facial tics, spitting tic, hallucinations, extreme fears, constant reassurance seeking, etc, that developed overnight and took over my sons being was a strep virus gone wrong! His body's antibodies were attacking his brain instead of the strep and complete HAVOC and HELL was happening before our eyes! The diagnosis did not come from a doctor's insight. Our doctor said that was typical behaviors and NOT TO WORRY! Our diagnosis came after finding info on the web in a desperate search! Thank you PANDAS NETWORK for your constant fight forward to save ALL of our kids!!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Role:  Client Served