My Nonprofit Reviews

livelifefully - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

livelifefully

132 profile views
3 reviews

Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA

Rating: 5 stars  

Excellent nonprofit! Linda has been very helpful with anything I have ever questioned.

Role:  Client Served
 

Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA

Rating: 5 stars  

This is an exceptional organization to turn to when you receive a diagnosis of a rare genetic disease. Thank you so much for all you do!

My child was diagnosed at age 17 with mosaic partial trisomy 18. Very rare and not a lot of information on "mosaic" partial trisomy 18. This organization was the most helpful of all I contacted.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Role:  Client Served
 

Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA

Rating: 5 stars  

This non-profit does exactly what it claims to do: non-profit organization providing support, information, education and advocacy to and for all those diagnosed with a rare chromosome disorder.

A genetic counselor recommended them and I am grateful she did!

If I had to make changes to this organization, I would...

None

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Role:  Client Served