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Laura194

184 profile views
2 reviews

Review for FRAXA Research Foundation, Newburyport, MA, USA

Rating: 5 stars  

This is a wonderful organization that has done so much to help people like my brother. I greatly appreciate their work and the research that has resulted from their efforts.

Role:  Volunteer
 

Review for FRAXA Research Foundation, Newburyport, MA, USA

Rating: 5 stars  

My brother has Fragile X and my parents founded FRAXA in order to find a cure for him and others affected by Fragile X. The work they have done over my lifetime continues to amaze me. The foundation has come so far from being a small operation in the spare bedroom of our house to an amazing foundation that has made so much progress. It gives me hope for my brother and my future children who could also have Fragile X (I'm a carrier). I am so proud to see how much has been done and how much continues to be researched and developed.

If I had to make changes to this organization, I would...

have more drug companies involved and running trials. There have been some potential treatments that have had limited success but more needs to be done to find something more promising.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Volunteer