My Nonprofit Reviews
hyalohall
Review for Amyloidosis Foundation, Clarkston, MI, USA
All of the Amyloidosis diseases are confusing and complicated and there is little information out there that is straightforward and helpful. The Amyloidosis Foundation went above and beyond to help me and my family when my brother was diagnosed with AL amyloidosis. The website contains medical articles that are updated and informative. The volunteers with the organization are helpful and supportive. I am very impressed with their fundraising efforts and annual research grants to further awareness and research. If it weren't for this foundation, I would have been unable to navigate the medical jargon and they know all of the specialists in this disease so they can guide anyone, worldwide, to medical professionals to help them. I am very grateful that they were there for my brother and my entire family. When I call them, they talk to me right away - and always call back when needed!
More Feedback
If I had to make changes to this organization, I would...
I would increase their funding, if I had boatloads of money! More booklets and handouts about this disease would help to spread awareness. And with more funding, comes more research!
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
