My Nonprofit Reviews

I have been connected with VEDA since I was initially diagnosed with Vestibular "Neuronitis" in 1986 (pre-MRI; I am allergic to CT contrast medium;). At that time the research and growing body of information available through VEDA helped me to understand the symptoms I was experiencing, especially the varied distortions in my balance the dramatic changes in cognitive processes. VEDA has LITERALLY saved my sanity and self-confidence over the years since the initial onset. That is not an understatement!
In the mid 1980's physicians were largely unaware of symptoms of vestibular disorders. I was fortunate to have worked with an ENT surgeon who quickly pinpointed the likely vestibular origin of my symptoms. However subsequent referrals by my primary care to neurologists brought very unpleasant, pejorative evaluations and allusions to malingering and psychiatric origins.
I believe VEDA has been a major catalyst and leader in furthering awareness of vestibular disorders among physicians, the development of PT reeducation of balance, research to provide further information, support to and from specialists.... so many positive developments in a life-altering yet largely invisible disease process.
I was a highly functioning RN working in the operating room at the time of onset. After 6 months away from work, mostly housebound, much of the time sleeping and regaining a semblance of balance, I found that I was unable to prioritize and re-prioritize without extreme effort and hesitation, unworkable and unsafe for patients. Information from VEDA assisted me in decisions to move to other areas of nursing. And it helped me compensate for chronic disabilities and the accompanying fatigue. It also was a source of reassurance in a few situations when coworkers judged my situation harshly.
I have been fortunate to have been able to learn to compensate or leave behind prior pleasures (bicycling, skiing,) adjust my lifestyle and continue in my profession over the past 25+ years. As I am aging, I experience the subtle decline in balance and abilities to multitask are further challenged by the underlying chronic vestibular disability. PT is a valuable assistance. And VEDA continues to be a source of valuable information. I introduce VEDA to physicians, friends and acquaintances who are experiencing inner ear symptoms.VEDA is worthy of all the support we can muster; the money is well-used and the results are indeed life changing.

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