My Nonprofit Reviews

My pain ride started 31 years ago when I was still residing in the England, it all began with an innocuous injury to my right ring finger when playing water Polo. After some 16 surgeries as well as many other painful attempts to reduce the pain I was told that I had RSD/CRPS and would have to live the rest of my life in pain. As a result of the cold damp weather in England my family and I emigrated to the United States in 1991. Having lived in Florida for the first 14 years in the US we then moved to Pennsylvania for a job that was promised to be just a desk job for myself as we had already established that operating machinery of any kind aggravated my RSD. Unfortunately, the promise that we were made did not materialize and I was effectively forced to operate machinery which resulted in aggravating the RSD.
I became aware of US pain foundation after reading the exceptional book by Nicole Hemmenway titled "No it is not in my head". After my initial contact with Paul Gileno my wife and I were invited to the launch of the invisible project where we met Nicole and after visiting other support groups I was at last impressed by the candor and integrity of both Paul and Nicole. Instead of the usual moaning and groaning the US pain foundation was a breath of fresh air because they embraced the notion that pain was invisible and that we must work together to bring in to the public domain the fact that pain and people suffering from it is very real.
I cannot stress sufficiently how impressed I have been with the US pain foundation and with Nicole and Paul's vision of bringing pain from obscurity into the public domain. They understand that those of us who suffer in silence must work with each other not for sympathy but for empathy and that we must become very real so as to increase the ability of researchers to find cures.
Finally, there is an organization run by people who suffer and understand the very realities of living with pain but are working to help those of us who also live with pain 24/7 as well as mobilizing the pain community to help ourselves by becoming lobbyists both at state and federal levels.
The US pain foundation has breathed a new life into me and I believe they do so for many other pain sufferers. I hope that I am able to assist others as well as the foundation and particularly Paul and Nicole who are extraordinary people. They have developed a charitable organization from absolutely nothing into an amazing organization and have hired others in pain who are also extremely helpful and well organized individuals and I appreciate every single person associated with the organization.

More Feedback