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Vibeke Steen B.

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1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 4 stars  

The IETF has helped me get information and is a fabulous website to referr doctors teachers or others for more information. I have had ET since childhood, have got a son with it, but didn't have a name to it until a couple of years ago. Tje information and tips om their website will help in letting my son deal in a better way. For us born with ET, there are a lot of challenges in daily life that we don't allways knows the cause of. Understanding this, threw information and "meeting" other ET-ers, enables to find solutions. The IETF has helped me find a FB-group, good support since there are no support groups in my country.

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Role:  General Member of the Public