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Vibeke Steen B.

133 profile views
1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 4 stars  

The IETF has helped me get information and is a fabulous website to referr doctors teachers or others for more information. I have had ET since childhood, have got a son with it, but didn't have a name to it until a couple of years ago. Tje information and tips om their website will help in letting my son deal in a better way. For us born with ET, there are a lot of challenges in daily life that we don't allways knows the cause of. Understanding this, threw information and "meeting" other ET-ers, enables to find solutions. The IETF has helped me find a FB-group, good support since there are no support groups in my country.

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

Some

When was your last experience with this nonprofit?

2013

Role:  General Member of the Public