My Nonprofit Reviews

The US Pain Foundation is an amazing non profit group. I was diagnosed with 2 different neurological conditions , one in 1995 after being stopped at a red light and being rear ended by a drunk driver who drove right through my trunk. All my life I had been a professional actress/ dancer/ singer and wound up with a hideously painful condition called RSD or CRPS. The other is Dystonia which causes severe uncontrollable muscle spasm.
The US pain Foundation has been AS IMPORTANT to me as any other part of my treatment for these conditions that have no known cause nor cure at this point. I would no sooner stop going to their website than I would stop seeing my doctors or seeing my therapist. The support from other members in the same condition I am in, who KNOW... Really know what I am going though is more important than I can ever say! I cried when I first spoke to someone with RSD that said I know how you feel! I didn't have to explain all the terribly hard things an RSD patient goes through silently and most of the time invisibly ( to the rest of the world ) every single day. The trying times with our families, the painful treatments that we will go through... And the Pain foundation is there to oversee everything and help us all! Like I said, AS important to me as my doctor ! Sometimes maybe even more !

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