My Nonprofit Reviews

I have had RSD/CRPS, the most painful condition known to medicine, for over 4 years. There is no cure for this syndrome and there are very few effective treatments.

The US Pain Foundation has been a source of extremely important information and support to me in my struggle to deal with this condition. They offer important scientific and regulatory information daily via Facebook, help us understand the changes in regulations that affect our care, and they provide us with a voice in speaking out for patients who cannot always effectively protect their own interests.

Since many pain patients have "invisible" symptoms, they have the additional problem of not always being believed. The US Pain Foundation understands all of the problems that are unique to pain patients and they are an invaluable source of support in understanding and addressing the difficulties we face.

Recently, I've been depending on them even more with the potential changes in legislation regarding some of the few medications that make my life worth living. I cannot express how important this organization is for me, knowing that they will do whatever is necessary to try to protect my interests, and those of all the people like me, who have a fragile existence that can be shattered by lawmakers, lawyers and even doctors who do not believe in our symptoms or in the importance of pallative care.

Thank you, Paul Gileno, for the work that you have done for all of us. Thank you for supporting our heroes, like our dearest Kaitlyn Pintor and Nicole Hemmenway! Great job, please know we appreciate all that you do!

More Feedback