My Nonprofit Reviews

ARRE has united a group of families who have a child with an ASXL gene mutation. ARRE has helped us not to feel so alone in a rare diagnosis. This non profit has also given us a voice as well as hope for our children and their futures. ARRE advocates for research and educates families regarding best practices for medical interventions as well as therapeutic interventions. This summer we were able to attend the ARRE Family Meeting and it was an incredible experience to be able to meet other families just like ours!

Family To Family Network has been a lifesaver to our family. Having a child with a genetic disorder that causes health issues and intellectual disabilities has thrown us into a whole new world where we felt lost, overwhelmed, and alone. F2F has provided support, connected me with other parents, taught me how to get the services my daughter needs, and given us opportunities that our entire family can enjoy. Thank you!!

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