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Melissa167

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1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

This group is not only a support group to turn to when you are needing information regarding 1p36, a group to share when you see something different with your child and need to find out how normal it is within individuals with this diagnosis. But they become a family from the moment you join to the moment you are able to start meeting some face to face. You go to conference and come home with some of the best friends and new family members. When one family is in pain we all come together as a group for each other. If a child gains their wings we all feel it. This is a group I gladly call my family.

If I had to make changes to this organization, I would...

do absolutely nothing different!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served