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rtlee

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1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

When your family is told that a child has s very serious condition, your world falls silent, yet full of questions. What does this mean for the child? What does this mean to me? What will my kid be able to do? Not do? Will my kid die an early death.

Our fear gripped us, but this group, 1p36 DSA, calmed our fears. Through the group, we were able to understand our daughter's condition and what care she needed to have a high quality life. Through the group, we were also introduced to a number of other families, friends, and children who also have the condition. Their warmth, openness, and caring has made all the difference in the world to our family and, especially, our child.

If I had to make changes to this organization, I would...

Increase its funding and awareness.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served