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Beths mom

199 profile views
1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

My daughter is 47, and we did not get her diagnosis of 1p36 until she had new genetic testing seven years ago. Finding this support group has been incredibly helpful. It has given me better understanding of the cause of her difficulties. For the first time in her life, we've found others like Beth--she has a "family" where she fits in and is understood.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served