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Patrinky

133 profile views
2 reviews

Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA

Rating: 5 stars  

When my nephew, Jack, was diagnosed with CdLS 19 years ago, we had never heard of it. Although CdLS USA was relatively new and much smaller back then, it helped our family in a big way by opening up a network of resources and access to other families. Knowing we were not alone on this unfamiliar journey helped immensely. As a result, and due in a huge part to his mom and dad’s superb parenting, Jack has thrived and grown into an active and content young man. Kudos to CdLS USA!

Role:  Donor
 

Review for Hearing Loss Association of America, Bethesda, MD, USA

Rating: 5 stars  

HLAA is extremely influential and effective in all things related to hearing loss. They fight for our rights in Congress and then take the time to tell us what we can do to fight for our rights. They are staffed by an amazing group of people who are totally dedicated to helping us live successfully with hearing loss. They have all the materials and supplies to provide information on a large range of topics. They are the source for answers to many questions people have about hearing aids, such as cost, rights, and insurance. HLAA is a truly amazing non-profit.

If I had to make changes to this organization, I would...

Alternate the W4H and the Conventions so they're every other year.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer