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Nancy Lelewer Sonnabend

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2 reviews

Review for Hearing Loss Association of America, Bethesda, MD, USA

Rating: 5 stars  

My mom had profound hearing loss from about the age of 45 years. My dad understood what she was going through but I really didn't get it. She got involved with Rocky and Amie and SHHH and her life improved dramatically. Then I lost my hearing and eventually was put on the HLAA national board. After the 2nd meeting several board members took me aside and told me I should go to NYU to be evaluated for a cochlear implant. I did this and shortly thereafter Dr. Thomas Roland implanted a cochlear on my left side. I feel so lucky to have gotten my life back and I owe it to HLAA.

Role:  Volunteer

Review for Hearing Loss Association of America, Bethesda, MD, USA

Rating: 5 stars  

While in the receiving line at my wedding my Mom realized she couldn't hear the names of people introduced to her. Her hearing continued to decline and she was fitted for stronger and stronger hearing aids bilaterally. Going to social events was difficult in spite of my father's translating much of what was being said. It got to the point that she didn't want to go out. Then my parents met Rocky and Ahmy Stone and attended the SHHH Conference in Chicago. Those two events were life changers for my mom. She learned to speak up for herself and started the first SHHH (later to be renamed HLAA) chapters in Winnetka, IL and Sarasota, FL. She also taught lip reading for over 35 years.

Thus when my hearing began to go I knew to ask for hearing aids. I received one in my right ear but was told that I was deaf in my left ear and a hearing aid would not help that ear and I was not a candidate for a cochlear implant. After asking for a cochlear implant for several years I was told by fellow HLAA trustees to get out of the state in which I live and go to New York. I now have a cochlear implant and have my life back.

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Role:  Board Member