My Nonprofit Reviews

As a former member of the BOD at the Foundation for 6 years, it was gratifying to see how this organization works tirelessly to advocate for public awareness and individual support for those in extreme need.
I feel that educating the public and the medical community is something that the Foundation does very well. The new updated website allows individuals the opportunity to access current information regarding this disease. It is so important to support the Foundation so that the continued research will give hope to those who have not been helped by the current medications.
It was a very rewarding experience to be on the BOD, and I would highly recommend that you give of yourself to help those who are so desperate.

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