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Review for Cure AHC- Alternating Hemiplegia of Childhood, Rolesville, NC, USA

Rating: 5 stars  

With having the pleasure of knowing Matthew since his birth, I have also witnessed the amazing devotion of his parents. With their creation of Cure AHC, I continued to be amazed. Through their efforts, they have been able to engage Duke University. This amazing partnership has led to Duke discovering the gene and creating an AHC clinic in their Children's Hospital. Because of the drive and dedication of Cure AHC, I truly believe they will be pivotal in finding the cure.

I am so proud to be associated with them via donating and volunteering. This group fully has their vision on finding the cure and that type of dedication is what every Charity needs.

If I had to make changes to this organization, I would...

Love to be able to get a high profile person to help promote this disease and cause. So many children are being misdiagnosed as those who now know, we need help with getting more individuals informed.

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Role:  Donor