My Nonprofit Reviews
Review for VHL Alliance, Boston, MA, USA
I was diagnosed with VHL in 1993 and became of the VHLFA shortly thereafter. The VHLFA has been the hub for patient education on the symptoms and monitoring of VHL and the backbone into research and establishing Clinical Care Center. The VHLFA is not only an organization but also a "community" where people can feel like they are not alone in the fight against VHL.
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How do you feel you were treated by this organization?
When was your last experience with this nonprofit?