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Jeffery Bialek

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1 reviews

Review for Cure AHC- Alternating Hemiplegia of Childhood, Rolesville, NC, USA

Rating: 5 stars  

My friend's son is affected by AHC and so I support and keep up with all the efforts this group undertakes. For a little known disease with small numbers of affected individuals, little press and no powerhouse type sponsors, I am amazed on an almost daily basis on how much they do and how much care and comfort they bring to the community that lives with AHC every day. The resources, information, and support they provide seems priceless and as they have grown the ability to effect positive change in the medical and scientific arena seems equally phenomenal.

If I had to make changes to this organization, I would...

Help them to grow awareness on a national and global scale to bring the additional resources to bear to help find a cure and make the lives of those suffering with the disease as good as it possibly can be until that cure is found.

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Role:  General Member of the Public