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MGbB

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1 reviews

Review for Restless Legs Syndrome Foundation Inc, Austin, TX, USA

Rating: 5 stars  


I can't help but wonder where I would be today had I not found the WED/RLS Foundation when I did. I was suffering from uncontrollable and severe leg 'symptoms' that were getting progressively worse and controlled only with strong narcotics. Where would that have led me ??? At that time, I didn't even have a name for what was happening to me nor could I find a doctor any wiser. And then I heard about THIS FOUNDATION !!! The Foundation was still pretty new at that time (1990's) and their information compared with today was pretty sketchy. However it was also evident t that I was not alone and others were not only volunteering their time to help search for answers but willing to share what they had learned. Importantly, I found some relief from this miserable condition.
I'm a strong believer in 'giving back' and I decided to try to help in any way I could so others would have an easier time.

As a result I sat on the Board for six years, have volunteered for our local Support Group and am on the Canadian WED/RLS board. I've specifically targeted the medical community and my particular interest is in our 'aging population' (since I am one!) and the multiple problems this disease can exacerbate.

Without the direction of the Foundation none of this would have been possible. I owe a great debt .
Much is left to be done. I hope others with this condition will help us continue to find answers. We can always use your help.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Board Member