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Review for Sickle Cell Awareness Foundation Corp Int, Jamaica, NY, USA

Rating: 5 stars  

Sickle Cell Awareness Foundation Corp Intl, Was founded by Syd and Merlene Sotillo, we started this organization because he(SYD) and sister Cathy were tired of the treatment by ER and Hospital staff, Sickle Cell Disease can be devastating, people with SCD often experience debilitating pain episodes, entrapment of blood within the spleen, severe anemia, septicemia, meningitis, stroke, acute lung complications, acute chest syndrome, bacterial infections and other life threatening complications. It is a complex disorder, which can affect several of the body's system. It requires specialized comprehensive and continuous medical care to achieve the best possible health outcome for the individual. Currently, the most effective methods to treat or prevent the most severe complications are monthly blood transfusions, or where possible, a Bone Marrow Transplant. We provide Genetic counseling, blood drive, health fairs, 5 k walk/run, monthly support group, On April 20th of last year Syd passed away from complications of this disease, he was funny, loving, and a great motivator.

If I had to make changes to this organization, I would...

I would design more educational programs, aim to increase awareness and enhance preventative measures of sickle cell. Collaborate with other community based organizations to participate in awareness programs concerning sickle cell disease.

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Very Well

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Role:  Volunteer