My Nonprofit Reviews
Review for Global Genes®, Aliso Viejo, CA, USA
Most non-profit organizations for rare diseases are started by a family or family member that is affected in some way by that disease. These organizations are typically small, they operate on shoestring budgets, and they work their missions form grassroots efforts.
Global Genes is an incredible organization that advocates for all rare diseases and their non-profit support groups. Global Genes enables these grassroots groups to advocate for their disease and educate at a level that is very difficult to reach for smaller organizations. Through fulfilling their mission, Global Genes brings a level of impact that could only be achieved through teamwork and collaboration.
If I had to make changes to this organization, I would...
Make sure every single family/person fighting a rare disease knows about Global Genes and the incredible work they do on behalf of the rare disease community.
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