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Review for Als Worldwide, Fitchburg, WI, USA

Rating: 5 stars  

I have never met anyone like Stephen and Barbara Byer and ALS WORLDWİDE whole my life. When I first talked with them . I really felt the sincerety like even more than any of my relatives. They were the only one who really understood our situation. Our feelings about not being able to do anyhing about our most loved one,my mum, was killing us day by day but they gave such great help and support that we could continue our life.they made us obtain symptom relieveing meds that were really helpful. You feel that you are not alone and there is hope and there is something to do.This is very important because if you lose your hope , you löse everthing as this is the worst diagnosis that the human being can take I think.
I also met them in İstanbul,they were really helpful and kind. We spent several hours together but I haven't seen any sign of that they got bored of our several questions that we hadn't got reply from anyone until then .They were so friendly and sincere. We really had great time together. They also spoke with my mum on Skype and fortunately directed us to the doctor Merit Cudkowich from MGH. They helped us with the all contacts and procedures step by step.By means of them,we got the courage to see doctor abroad. And I think this is the most true decision we have taken so far.
We had some problem at the biiling department at MGH. We were really got shocked and stressed. They were the first people I called without hesitation and again only people who really relieved us. I don't know what I could do without their assistance.By their support ,we could turn back to our country in safe.Thanks to God ,we met them in this really desperate situation . We are very lucky and we will be debtful and grateful to them throughout our life.And they have never charged anything from us for their service so far.

Yasemin Akarsu

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Role:  Volunteer