My Nonprofit Reviews
RosemaryBaffa
Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA
Our family has been a part of BSF from the beginning. My affected son has been profoundly impacted by the benefits of our involvement, from new information to make his life better, to friends and supporters the world over. BSF is also a family affair, each of us utilizing our gifts to do our part, from fundraising, family services and the Board of Directors to name a few!
All our lives have been not only supported, but enriched.
Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA
Life before BSF can be characterized by one word, isolation. Isolation from informed doctors and researchers, from necessary services, from other affected boys and families, and from support of any nature.
Life since BSF can be characterized by one word, teamwork. Teamwork amongst doctors and researchers, services providers, affected boys and their families, and support from all involved!
BSF is HOPE, for a treatment, a cure, for a better life for all our boys/young men!
More Feedback
If I had to make changes to this organization, I would...
Include discussion and possibilities for the participation of, and services for the young adult population of BSF.
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
