My Nonprofit Reviews

When our son was first diagnosed there was not a reliable support group to reach out to, there was not a diagnosis code, or a consensus. I felt lost and very alone in the battle of FPIES, but after IAFFPE started and I was able to dedicate my time and energy to volunteering with the group it has made our family feel like we are doing something for all the kids out there now and in the future with FPIES. I can feel good that newly diagnosed children and families have reliable information and support, as well as the physicians out there looking to help their patients. I will continue to dedicate time and energy even though my son is showing signs of growing out of FPIES. It is amazing to see the strides in the past two years, and to hope for what we can change in the future, I can't wait to spend more time with all that volunteer and work for IAFFPE!

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