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5centStargazer

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1 reviews

Review for International FPIES Association (I-FPIES) , Point Pleasant, NJ, USA

Rating: 5 stars  

IAFFPE is an extraordinary resource for families learning about and coming to terms with an FPIES diagnosis. Change that. In my own experience, IAFFPE was one of the major reasons my son RECEIVED a diagnosis- certainly his well-intentioned and well-read pediatrician did not identify the condition, though he lost weight beginning at 6 months of age. Without IAFFPE we would not have found our way to competent specialists, a supportive network of peer mom and dads coping with FPIES, or some of the very helpful practical ideas for how to approach the food trials we received there. We would have tried and failed more foods and would not be able, as we are now, at 2 1/4 to say we have made it to allergy-free. We have our son's health and our family life back because of all the rapid intervention that IAFFPE helped make possible.

If I had to make changes to this organization, I would...

Help them to get more publicity so that they can be found even more quickly by families struggling to identify FPIES in their sick children.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served