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Tiffiny W.

154 profile views
1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 4 stars  

My daughter just turned 4 in July, she was diagnosed at about 2 weeks old with 1P36 Deletion Syndrome. We weren't given a lot of information so we started searching the internet and found a 1P36 conference and knew we needed to go. We went and meet a great family and learned about the support group, it has been wonderful. I have learned so much from this group and do feel like we are a big family as we get so much information and support from it. We share each other's joys & challenges, celebrate and encouraged and that makes us a family. So glad I have this support can't imagine getting through this journey without these people.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served