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Tamara11

202 profile views
2 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

1P36 DSA has been an incredible resource for our family! After my daughter was diagnosed and our doctors had little information to give is we were left to do research on our own. The 1P36 DSA site gave us the information we needed and has been an invaluable resource.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served
 

Review for , , ,

Rating: 4 stars  

My daughter was diagnosed at 2 months old with Polymicrogyria. We were scared and in desperate need of information and support and found very little at that time. Since then PMG Awareness has been created and it is such an amazing gift to the families of children with PMG. I wish we had had this to go to when we started our journey! They are doing great work!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served
catrina (Nonprofit Staff) wrote:

Thank you so much for taking the time to review our organization, Tamara! Our goal is to have the opportunity for every newly diagnosed family to get the information and support they need.