My Nonprofit Reviews
CO Mama
Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA
My son was recently diagnosed with Cornelia de Lange Syndrome. One of my first calls was to the CdLS Foundation. Within hours they sent information about CdLS, put a packet of follow-up information in the mail (which we received 2 days later), connected us with another CdLS family living in CO and talked us through how to jump into this new world we were suddenly a part of. While the diagnosis was tough to hear, we wanted to quickly learn as much as possible to get our son the services and support he needs to live his best life. The CdLS Foundation gave us a jump start and also invited us into the family with open arms. We've been grateful for their help!
Our son is an amazing little guy and is making HUGE progress with his new therapies. And we are looking forward to going to the West Region Family Gathering this September to meet other CdLS families. Thank you CdLS Foundation!!
More Feedback
How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
