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Carol104

327 profile views
3 reviews

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

I've been part of AHCF for many years and they've always been very supportive. This year was a particularly significant in terms of support. My son, who has AHC, was hospitalized for two months and I was put in contact with a neurologist on the medical advisory board to consult with my son's hospital neurologist. The sharing of information and advice was invaluable at a time where local doctors were very confused about my son's condition. Thank you AHCF!

Role:  Board Member
 

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

AHCF always has someone to get you the support you need. It has a great panel of physicians advisors and the majority of its fundraising goes to medical research. It's Family Conferences are definitely worthwhile to attend!

Role:  Board Member
 

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

I have been involved with the foundation for the last 14 years and am constantly amazed at what a small group of people can achieve when they work together! AHC is not a popular disease, nor are there any famous people promoting our cause and yet year after year thousands of dollars are raised for research! Family meetings are held to support one another. Doctors volunteer their time to be on our medical advisory board. Please consider donating!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Board Member