My Nonprofit Reviews
Linda198
Review for Coping With Laryngomalacia, Inc, Belford, NJ, USA
the evening after my daughter was born with severe LM, i was inconsoleble. i felt scared and alone in my hospitalbed knowing my daughter laid two floors down and i could not reach her if she needed me. she was so low in her sats i feared for her. then i went looking for information and found CWL. with CWL i found a family of sisters and brothers who were there for me in these hard times. during the last 2 years with 4 children with LM, i learned from the others what to do, what to expect and how to cope with the long nights in the icu. i hope the new moms and dads with the same fears as i had can learn from my experiances as we all talk together and join forces to help our kids. we are all looking out for eachother and are there when needed. when the carepackage for one of my children arrived containing LU and a blanket etc. tears welled form my eyes and even i wasn't forgotten with a nice note and some mary kay products. i'm gratefull for the help and the lessons i learned form stephanie, her team and the other moms. with you steph and them i would never have the knowledge i do now so i can help my kids during these challenging years behind and ahead of us.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2014
Review for Coping With Laryngomalacia, Inc, Belford, NJ, USA
my daughter was diagnosed with LM at birth. after a week in the hospital she was released. when she was taken ill and was hospitalized again; i needed information and i as a mother felt all alone. by coincedence i found CWL and with their support and great information i don't see my childs future as bleak as i first tought and i'm not afraid anymore thanks to the information. also talking to other parrents and sharing solutions helped me alot. knowing you are not alone in your struggle is very comforting.
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If I had to make changes to this organization, I would...
i would like a dutch chapter in the Netherlands.
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
