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Sara78

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1 reviews

Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA

Rating: 5 stars  

Cardiomyopathy is a rare disease in children. I didn't even know what it was when my daughter was diagnosed at 8 months. CCF was a lifeline for us. They provided information and resources all in one place, making the job of educating ourselves about this illness much less daunting. They also connected us to other parents battling the same illness, providing us with a built-in support group that made us feel much less alone.
My daughter died at 15 months, but I still do my best to help other families still on this journey. I want to help find a cure. And CCF is helping me to do both things. I can't think of a better way to honor my daughter's memory.

When was your last experience with this nonprofit?

2013

Role:  Client Served