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Becky43

178 profile views
2 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

I have had the honor to become involved as a volunteer for my local chapter and to attend the annual March on Capitol Hill for funding. The Alliance gives us so much hope for the future of our children. It is a great resource for information and assistance.

Role:  Volunteer
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

My son was born in March of 2012 and diagnosed hours after birth. We had never heard of TSC, yet our son was facing brain surgery. The first person I spoke with was the chair of the local alliance. I've since become the chair and gone to DC with the alliance to seek funding. I'm so thankful there is a group seeking to better the lives of those with TSC and that gives me a chance to be involved. I have so much more hope for my son's future. -Becky Gaunt

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer