My Nonprofit Reviews

I first became aware of Global Genes this past summer. They quickly stood out as an organization with a focus on an amazing mission and a finger on the pulse of what their community needs. The resources they are offering are much needed in the often isolating world of living with rare disease, and their willingness to partner with others to spread their message of hope and offer great resources is fantastic. As a holistic health coach AND a patient with a rare disease, I highly recommend them.

I found PHA five years ago, shortly after my diagnosis. The community of patients became my lifeline. As time went on and I got more directly involved in advocacy, PHA provided multiple opportunities and connections that allowed for a real difference to be made. What I love about this organization is that if you have drive and a desire to get involved, there is always a meaningful way to do so. This goes for patients, caregivers, and doctors alike, and has created an incredibly supportive and integrative community making true strides towards a cure.

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