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1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 5 stars  

I've had ET since I was about 9 years old. Now at 83, my tremor is worse but my attitude is much better. The embarrassment I lived with especially in my teens and early career years is a thing of the past. Thanks to IETF I have come to understand that I have a medical condition and while it may create some awkward moments socially, I can simply explain it and any potential embarrassment vanishes.
I am currently a volunteer in a study sponsored by the U. of Miami Medical Center involving the effects of propanolol and alcohol on ET. The study is under the direction of neurologist Dr. Nahab, a member of the IETF board. While I probably won't reap the benefits of the study, it's entirely possible my grandchildren will. (ET tends to be familial. My Dad had it, two of my children slightly and now at least one grandchild.)

Would you volunteer for this group again?


For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?


When was your last experience with this nonprofit?


Role:  Volunteer