My Nonprofit Reviews

joden33 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

joden33

226 profile views
1 reviews

Review for International Essential Tremor Foundation, Lenexa, KS, USA

Rating: 5 stars  

My late father had Parkinson's Disease and my brother and I both have ET. I am 69 and the tremors started over 30 years ago. They are increasing as time goes by. After discovering the IETF website I am greatly encouraged to know that there is an organization dedicated to this condition.
I am particularly interested in the progress of research of ET and assistive devices that are available to help us cope more effectively with tremors.
Although I am not involved in a group, I find the website to be very helpful. The sooner the spotlight of public awareness is focused on IETF the sooner a cure can be found for this frustrating and debilitating condition that affects millions.

When was your last experience with this nonprofit?

2013

Role:  General Member of the Public