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Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 5 stars  

When I went to my neurologist's office for the first time, I saw a pamphlet about the IETF. This had to be in the 1980's. (I've been dealing with ET since age 11 & was diagnosed at age 19; I am now 63.) I joined the organization & began receiving information.

The IETF is the only organization educating & helping ET patients & families, increasing public awareness about ET, & funding research. I cannot believe how much the IETF has grown over the years, in scope, member size, & professionalism. They serve their members with such passion.

They have helped me become better educated about my condition, helped me find neurologists & neurosurgeons, introduced me to thousands of fellow ET sufferers so I realized I was not alone, & are always there to answer my questions or direct me to the right place.

I decided to become a Support Group Leader (SGL) in 2001, wanting so much to help others & increase awareness, after having been helped by the IETF. I led a group in Michigan for 6 years. Because of my successful work as a SGL, I was asked to join the board in 2002, I believe. I continue to actively serve on the board, currently as one of the past presidents.

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Role:  Board Member