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ShariF

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1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 5 stars  

When I went to my neurologist's office for the first time, I saw a pamphlet about the IETF. This had to be in the 1980's. (I've been dealing with ET since age 11 & was diagnosed at age 19; I am now 63.) I joined the organization & began receiving information.

The IETF is the only organization educating & helping ET patients & families, increasing public awareness about ET, & funding research. I cannot believe how much the IETF has grown over the years, in scope, member size, & professionalism. They serve their members with such passion.

They have helped me become better educated about my condition, helped me find neurologists & neurosurgeons, introduced me to thousands of fellow ET sufferers so I realized I was not alone, & are always there to answer my questions or direct me to the right place.

I decided to become a Support Group Leader (SGL) in 2001, wanting so much to help others & increase awareness, after having been helped by the IETF. I led a group in Michigan for 6 years. Because of my successful work as a SGL, I was asked to join the board in 2002, I believe. I continue to actively serve on the board, currently as one of the past presidents.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Board Member