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Review for Global Hydranencephaly Foundation, Seabeck, WA, USA

Rating: 5 stars  

My niece, Burkleigh, was diagnosed with Hydranencephaly while she was still in her mommy's stomach. I sought out any and all information I could get. My mother actually stumbled upon the Global Hydranencephaly Foundation web page and invited me to join the Facebook page. It's truly an amzing thing to know you're not alone while dealing with a disease like this that affects only 1 in 10,000 babies. This foundation is absolutely amazing and I'm so blessed to be a part of it.

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Very Well

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Role:  Volunteer