My Nonprofit Reviews

When my son was diagnoses with CMT we had no idea what it was and the doctors in the Chicago area were not very helpful and had little knowledge of CMT. I started searching for information on the internet and found the Charcot-Marie-Tooth Association (CMTA).
The CMTA has been a wealth of information since that point forward. I don’t know where we would be at this point if they did not exist. Thru the CMTA we now have a wonderful doctor, who is also a board member of the CMTA, Dr. Michael Shy, who we visit once a year in Iowa. Their website and newsletters have helped us so much thru the years. We have also had the opportunity to meet the other board members and have gotten to know the CEO of the CMTA, Pat Livney. Pat and each board member are very dedicated in finding a treatment and cure for CMT. Pat is the driving force and inspiration behind the CMTA. They are making remarkable strides to make it a reality for so many poeple effected by CMT. I know in my heart, after meeting Pat and all the members, that the CMTA will be the answer to helping my son and so many others that I know that are effective by CMT.
The CMTA has also helped me start a 'CMT Support/Action Group' in the Chicago area. I knew how much this was needed since it was so hard for me to find information to help my son. I have been a Support Group Leader for almost 5 years and have over 70 members. I can't tell you how many people come to a meeting for the first time and have never meet anyone before with CMT but have had it in their families for generations. It is wonderful to help so many and I would not be able to due so without the CMTA and all the information and guidance they provide.

Thank you CMTA!!!

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