My Nonprofit Reviews

Like so many others , my diagnosis with carcinoid of the mid-gut was a total surprize. I had several colonoscopies and no word of this dreaded disease. Then, while on vacation I was hit with a recurring feeling of bloating and back discomfort, much like a gallbladder attack, since I already had my gallbladder removed, and funny it was for the same symptoms. However, a thorough exam and a biopsy of , of all things , my colon, showed carcinoid and I was advised to get surgery quickly. I had the surgery at the same time and as they searched for the cause or related tumor, they found a large one in my intestine which along with other necessary actions they removed tumors in my lymph nodes. I have Stage 3 cancer. Luckily , my loving wife researced the word carcinoid on her blackberry while at my side and found The Carcinoid Cancer Foundation and Dr Richard Warner. When I got home I made an appointment to see him and I learned that I was suffering from a rare form of cancer. Patients of this cancer like to use a Zebra as a symbol to represent our oddity and sometimes invisibility in a forrest of shades of white and black (the cancer spectrum).

I am glad I found CCF and this amazing group . They are so caring and courageously face their world ahead with solidarity and stride. They also make me feel like I can also face my future in the same way,and that is,with hope and assurances that together we can learn more about our disease, and help to make out of this knowledge we share together , a better life. Please help support this great organization. I give it a resounding 5 POINTS!

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