My Nonprofit Reviews

I am proud to be a volunteer at FRAXA Research Foundation. Fragile X is a devastating diagnosis as our family knows first hand. However, when our son was diagnosed we immediately became involved with FRAXA and found that there is real hope for finding treatments for this genetic disease. FRAXA's main focus is on funding the most promising research. Just looking at the financials (http://fraxa.org/newsArticle.aspx?newsroom_id=63) you can see that, in 2012 as an example, 86% of money raised goes to research and 7% to education. That is phenomenal. The research FRAXA funds has led from a basic understanding of the disease to the medications that are currently in clinical trials. FRAXA has also hosted various scientific meetings that foster more collaborations among scientists in the field. This has quickened the pace of research even further. FRAXA hasn't lost sight of its original mission and continues to push forward, funding new ideas in research that are leading to many new treatment possibilities. For me, I have been proud to volunteer my time and donate money to FRAXA for the past 6 years because of the commitment to maintain the highest level of support for research. I feel that FRAXA's efforts will offer the best chance of reaching our goal of getting a real treatment for Fragile X to market.

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