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Review for Interstitial Cystitis Association, Rockville, MD, USA

Rating: 5 stars  

Just wanted to say that the ICA is alive and well. It is true that in 2011 we lost a grant from the CDC that represented a large portion of our yearly budget. The Board of Directors of the ICA spent many long hours trying to come up with a plan that would allow us to continue with our mission which is now, and has always been, to provide education, advocacy and research dollars to educate patients, family members, physicians and researchers. Unfortunately, as with any downsizing, some jobs were cut. After much research, it was determined that becoming part of an Association Management Company would be a way for us to continue operating and cut some of our expenses.

The day-to-day operations of the ICA are managed by our Executive Director, Lee Claassen. We also have a Program Coordinator and an employee who handles the day to day phone calls and requests for informational materials. Additionally, we have two patient advocates who work tirelessly to help those suffering with IC and several volunteers.

We have a strong Board of Directors whose job is to set goals and plan for the future of the ICA. There is no lack of transparency as we are required to file a Form 990 with the IRS on yearly basis. This report is available to the public. We also prepare an annual report that includes financial statements as well as highlights from the year.

As you can see, the ICA is not in LIMBO! In fact, far from it!!

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Role:  Board Member