My Nonprofit Reviews

This is to supplment the review I wrote in 2010. Since I wrote that review, I am happy to report that the MDS Foundation has retired its debt, is solidly in the black and is on firm financial ground. It has expanded its scientific and patient advocacy programs and has been instrumental in fostering the creation of patient support groups globally. Among its many projects, it has taken the lead role in forming the International Working Group for Prognosis in MDS (IWG-PM) which has recently published the revised Internation Prognostic Scoring System (IPSS-R) along with a calculator to be used by physicians. The Foundation's "Building Blocks of Hope" project has produced a comprehensive and dynamic compendium of important information on the disease.

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