My Nonprofit Reviews
Josh2012
Review for Cardio-Facio-Cutaneous International, Vestal, NY, USA
We recently had a diagnosis for our child's condition. It is a rare mutation affecting 200-300 people worldwide. That means, even qualified doctors would not be able to comprehend the full range of the syndrome as it rarely comes across their practice. Therefore, we were really delighted to find CFC International which provides advocacy and information to all parents. I cannot think of any non-profit organisation that is more needed and fully deserving of a praise. All we had to do is post our current issue with our child and within 24 hours, there are a number of families posting their experience, which is quite comforting.
More Feedback
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
The Internet has really helped all of us connect. It was a lonely world for those first 21 families who only connected by telephone or mail. I am pleased that you get answers back to quickly from the other families.
