My Nonprofit Reviews

For anyone undergoing the difficult days of surviving oral cancer, or if you are a caregiver to someone diagnosed with oral cancer, this site is unlike any other. It is the very best place to be to get all the latest, best, and most accurate information available. When my son Paul was diagnosed with Oral Cancer, he had a large lump under his tongue, and I was a basket case of worry and nerves. One day while waiting in the hospital waiting room as he was called in to get his radiation treatment, a young man sitting nearby came over to me and said "Go to the Oral Cancer Foundation's web site". He then left when he was called in for his Radiation treatment. He was he angel that led me to the Oral Cancer Foundation where I found so many wonderful, knowledgeable, and compassionate people. I was on the site during those early days of my son's recovery several times a day, and no matter what time of day or night it was, there was always someone ready to help with information and ideas and suggestions on how to help my son to survive what he was going through. There will never be words enough to describe how grateful I am to the founder, Brian Hill, and to all of the people at the Oral Cancer Foundation for my son's survival from this horrible disease. My son, Paul has been cancer-free since 12/19/06.

I found out about the Oral Cancer Foundation when my son was undergoing Radiation treatment for oral cancer. As I waited for my son to get back from his treatment, a young man sitting nearby came over to me and as he left for his own Radiation treatment, he smiled as he bent over and said to me, "Go to the Oral Cancer Foundation. They can help". I think often of this young man often and bless the day he led me to this wonderful organization. I don't know what we would have done without the kind and compassionate and knowledgeable help we received from everyone at the Oral Cancer Foundation. and all its volunteers throughout my son's treatment and beyond. In those early days of my son's recovery, I was online with the OCF many times throughout the day but no matter the time of day or night, there was always someone to help with never ending compassion and practical suggestions. They helped me over and over to help my son recover and to be strong for him. Day by day, I learned how to care for him and through the experience of others who were a little ahead of where my son was in his treatment, I was encouraged and was helped to learn what to expect at each stage. The research that this organization is part of is beyond amazing in what they have been able to do. I am so very grateful to Brian Hill, the founder for creating this tremendous organization.

My son and I found the Oral Cancer Foundation almost 8 years ago when he was diagnosed with Squamous Cell Cancer. Without this organization I don't know what we would have done. We found all the latest information, plus the support and compassion from members who had direct experience with oral cancer. Over the years I've been amazed how this site continues to keep us informed about all the latest research and information on Oral Cancer as well as the technical improvements to the site which makes it even more perfect than it already was! My son is cancer-free now but does have long term issues as many patients do, so we continue to benefit and learn from all the developments and issues related to the effects of radiation treatment which he received. I am so very grateful to Brian Hill, the founder of OCF and to all the wonderful people who make this the great organization that it is.

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When my son was first diagnosed with oral cancer, I was filled with anxiety and worry over what was happening to him. Searching online only frightened me more until I found the Oral Cancer Foundation soon after his surgery and just as he started Radiation Tx. Throughout his treatment, I found a wealth of of all the latest information, compassion, and practical advice but even more, I found hope, and this kept me going throughout the incredibly brutal treatment my son suffered through on his road to being "cancer-free". My son is now 7+ years cancer-free but I am still with the Oral Cancer Foundation, trying to give back a little of what we received. I continue learn and be amazed at everything that is going on with the latest research and all the great individuals who share their knowledge and support with others.

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When I found the Oral Cancer Foundation, I was sitting in the Radiation waiting room, feeling alone and scared and worried about my son who was in the Radiation room, strapped down to a table with a mask holding his dead in position and receiving his Rad Tx. Another young man just my son's age was called to receive his treatment, but as he passed by where I was sitting, he bent over and whispered to me "Go to the Oralcancerfoundation.org. They will help". And they indeed helped my son and me in every way possible - with the most recent accurate information available, plus the compassionate support from other survivors, sharing their own experiences and giving us hope, helping us daily and often several times a day. That was 7 years ago and my son is now cancer-free! I will never forget the young man in the waiting room who led me to the Oral Cancer Foundation. I continue to stay with this great organization to try to give back to others, the compassionate support and hope that was given to us.

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When my son Paul, aged 33, a non-smoker, was first diagnosed with Squamous Cell Cancer, I was so anxious, it took me three days after his diagnosis before I could bring myself to punch the words “Squamous Cell Cancer” on my laptop and everything I saw on the internet frightened me and left me more confused than ever. Somehow Paul got though surgery and had started his Radiation treatments. Then, one day as I sat in the Radiation room waiting and worrying about what was coming next, a young man sitting next to me, bent over and softly said to me, "Go to the OralCancerFoundation.org" - and that was the start of hope, knowledge, compassion and surviving cancer for my son and for me as his caregiver. At the Oral Cancer Foundation I found all the latest in accurate information, plus great suggestions from compassionate people who, with their knowledge and experience helped us every step of the way. I came to them many times every day and there was always someone there to listen, to offer helpful suggestions and to point me in the direction of accurate information no matter what time of day or night it was. That was more than six years ago and my son is doing just great, now. I still visit the Oral Cancer Foundation Site several times a day and try to pass on to other caregivers and survivors what I’ve learned from the Oral Cancer Foundation and to keep learning and increasing my own knowledge base in the fight against Oral Cancer so that some day we can make Oral Cancer history.

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