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Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

An excellent organisation providing unique information and support to affected individuals and their carers. They are a pioneering force in scientific research and strive constantly towards bettering the care of affected individuals via an ever evolving flow of information for healthcare professionals. As the mother of an affected boy I have received invaluable guidance and support from BSF.

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Very Well

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Role:  Client Served