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nkalapasev

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3 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

BSF is truly an amazing organization. They are a lifeline to families and individuals affected by Bart Syndrome. The wealth of knowledge and information, compassion and understanding, friendship and hope, that comes from being a part of an active, professional and caring foundation is beyond words. Barth Syndrome Foundation is simply phenomenal.

Role:  Client Served
 

Review for Mercy Medical Angels, Virginia Beach, VA, USA

Rating: 5 stars  

Mercy Airlift has helped my family on more than one occasion. After our son was born with Barth Syndrome (a rare metabolic disease), Mercy Airlift folks were able to provide us with flights to the Barth Syndrome medical and scientific conference. This simple gift allowed us to learn more about the disease, understand treatments, gave us hope for future, and started life-long friendships with people all over the world. Barth Syndrome Foundation became our lifeline. Mercy Airlift made that possible for us!!!
Thank you so much for helping us!

If I had to make changes to this organization, I would...

do nothing :)

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served
 

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

When our son was diagnosed with Barth Syndrome, we were terrified. BSF not only helped us through some of the toughest times in our lives, it also showed us hope and support beyond anything imaginable. If you are one of the few affected families around the world with this rare disease, you feel alone and misunderstood by everyone. In most cases, not even the Drs that are working on saving your child's life know anything about Barth Syndrome. The info and expert advice, coupled with medical and scientific advisory board and all the researchers working on the cure are INVALUABLE!!! You will never meet another group of people as dedicated and unwavering as BSF!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served