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Donna70

241 profile views
1 reviews

Review for Pulmonary Fibrosis Foundation, Chicago, IL, USA

Rating: 5 stars  

This group of folks is very supportive and informative. It has been a blessing to me. I have never met any of them. We share with one another and some folks have had that symptom and helps us with info. Most people, drs. Included haven't heard of PF or IPF. I was fortunate to get a very informed dr. He was recommended by the PFf from the group head. Dr. Ganesh Raghu at the University of WA. I was called the very next day. It can be scary if you don't have a good dr. The first one told me I had 2-3yrs. To live. I am in my 11th year.and.....planning for lots more!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer