My Nonprofit Reviews
cloverjane
Review for DES Action USA, New York, NY, USA
My life was turned upside down when, at 46 years old--I learned I was a DES daughter.
Amazingly, I had many medical clues over years of medical care but no physician ever put the pieces together, and neither did I.
Then I was diagnosed with a host of pre-cancerous signs. At the same time, I stumbled upon DES Action because a friend had heard of DES's terrible effects on women exposed.
Top-notch physicians at a major university medical center knew shockingly little about DES effects and doubted any connection.
However, decades old medical charts and DES Action resources proved my case and changed my treatment to something appropriate and ultimately life-saving.
I could not have gone through this without them...
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2013
Review for DES Action USA, New York, NY, USA
At 45 years old my life was up-ended by a cancer caused by the medication DES that was so rare that experienced physicians at a the University of Minnesota didn't believe it was possible. DES action gave me the tools, information and contacts to make sense of a life changing event. I tell everybody who will listen about the effects of DES, the impact it has on women, and the shameful coverup and continued medical world denial and ignorance of so many affected women and families. There is so much to learn, and when you have to explain to an oncologist at a major universities clinic for gynecology what DES exposure actually does to a body (and not the misinformation they've gleaned from a brief mention in medical school), you know there's a lot of advocacy to be done....DES Action is the only voice I know of doing this work.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
